Skip to main content

New Blog Background

Kylie and Kolby, you did such a beautiful job with Kolby's blog background. Kylie, thank you for spending so much time with your sister. I do not know what I would do without you and Kristi. Kolby loves you two very much and you both have a very special relationship with your sister. Your love and support is exactly what she needs when she gets tired of her mom. I actually have to chuckle when Kolby gets a little mad at me for nagging at her. I miss that feisty part of Kolby. But then I apologize to her, and that upsets her. She starts to cry, and then I start to cry, and it's a big mess. Then Kristi, Kylie, or John steps in and cheers her up. They are wonderful with her. I am so thankful and blessed to have such amazing daughters, and I am not just saying that.....it's the truth. It's amazing how one person with an illness can affect so many lives. In a good and bad way. When I start to get a little frustrated or overwhelmed, I can take a little break. But Kolby can't. Then I feel bad for feeling that way because she is suffering so much more.

Kolby had a pretty good day today. She still suffers from nausea, headaches, a horrible sore throat, and she threw up a few times today. She rarely gets off the couch, and she sleeps off and on all day. She does not have very much energy. I keep hoping that each morning she will feel better. I miss doing things with Kolby. She used to drive me crazy cause she wanted to go shopping all the time, and now I would give anything to take her shopping. Like tonight, she says she may want to go run a few errands with me tomorrow, but come tomorrow, she doesn't want to. This is an every day occurrence. My poor little Kolby just lays there on the couch and it breaks our hearts. She's sleeping right now....may you sleep peaceful tonight Kolby and may your pain be a little lighter tomorrow......I love you!

Comments

  1. Kolby and Dana,

    I came here from a facebook post on my wall from Janet Nordine. I am so glad I did. This is a special, holy place.

    Kolby, my prayers are with you. I love your spirit (and decor!) You are adorable and I hope you and your mom can go shopping soon. It's worth beating this whole stinky cancer thing.

    Dana, I also blogged through some tough times and it helped the process. Keep it up, it will be a blessing to you too. The blogging world is a big, sweet, supportive one.

    Love,
    Courtney
    (a blogger known as c jane)

    ReplyDelete
  2. Kolby, I hope you get back to nagging your mother for shopping soon!

    ReplyDelete

Post a Comment

Popular posts from this blog

A little note from me, Kolby.

I want thank Kristi and Kylie for designing these T-Shirts. At first I didn't want my name on the shirt. I really do not like having the attention on me. But, after I saw them I really liked them. Thank you Kristi and Kylie. Also, thank you so much Vicki and Dale for making the t-shirts, you did a great job. I just love them. Thank you!!! This has been really hard on me. I wish I felt better and I want my healthy body back. I miss hanging out with my friends and doing the things I like. I also do not like it when I feel sick. The blisters in my throat and mouth are gone right now, but when I take chemo again I know they will come back. It has been nice feeling good these last few days. I haven't had to have chemo this week because of the scans. It is such a good feeling to feel good again. I never really appreciated my healthy body till now. The chemo makes me feel horrible. I have no energy. I feel nauseous all the time and I get horrible headaches. They hurt so bad. I get s

Father's Day

Today was a great day for our family. Kolby went to church. It was a challenge , but it was really important for Kolby to go to church today with her dad. She got up, got ready and she looked beautiful. I really wish I would have taken pictures of the girls with their dad, but we were in such a hurry to get off to church that I forgot. Next time I will for sure. She was pretty emotional at church. It was a lot for her to get ready and go to church for the first time in a while. She wanted to arrive a few minutes late, and leave a few minutes early. It is really hard for Kolby to see people, only because of all the different emotions she is feeling right now. She gets very emotional when people hug her and express their love and support. She loves it, but right now, she cries every time she has a new visitor or sees people. So, please do not get offended if Kolby is quiet when you see her or visit with her. It's just how she is right now, and that's ok . Everyone deals wit

Keeping Kolby

Kolby’s website was originally named so appropriately by Sarah Barlow, one of our family’s closest friends. I think that more than anything it describes this strong selfish desire we have… not to lose our daughter in this battle with NHL cancer. Today we won another round in that fight. We got some results back from the cancer center today that had a lot of positive in it. Kolby’s new MRI and PET scans indicated that the cancer is on the retreat. Her tumors have reduced in size significantly as seen in the MRI photos, and the cancer cell activity has also dropped significantly. This is a good indication that the chemotherapy treatment is having a positive effect on her bone lesions and tumors. She still has mild patchy areas of disease on her sternum, anterior right first rib, anterior left 5th rib, in her lower vertebrate, and in her pelvic area. These areas still lit up on the PET scan, but the activity was greatly reduced. There was one area on her on her right first rib that has mi