Third day on the couch!

My poor Kolby doesn't have the energy to do anything. The last few days she has barely left the family room. Her weak body just wants to sleep. She wants to get up and shower but between the nausea and no energy, the couch wins! Tonight Blake and Lori Burr had a BBQ. We were planning on going all day, but after about the 10th time of her telling me that she was going to get up, I gave in and let her sleep. She asks me, "Mom, when am I going to feel better again"? Honestly, I do not know what to tell her. I watch her sleep. I look at my beautiful daughter and I wonder...and I think she should be out with her friends, swimming, going to the movies,and shopping. But no....instead she sleeps.

I want Kolby to know that I am very proud of you. You are my hero. You have always been such an example to me. You are so strong even when you cry. You have such a positive attitude. Even when you feel sick you still have a sparkle of hope in your eyes. Your sisters and you are my greatest blessings. Never forget how much I love you. Even when I make you take all your pills! LOL ;o)

Comments

A little note from me, Kolby.

I want thank Kristi and Kylie for designing these T-Shirts. At first I didn't want my name on the shirt. I really do not like having the attention on me. But, after I saw them I really liked them. Thank you Kristi and Kylie. Also, thank you so much Vicki and Dale for making the t-shirts, you did a great job. I just love them. Thank you!!! This has been really hard on me. I wish I felt better and I want my healthy body back. I miss hanging out with my friends and doing the things I like. I also do not like it when I feel sick. The blisters in my throat and mouth are gone right now, but when I take chemo again I know they will come back. It has been nice feeling good these last few days. I haven't had to have chemo this week because of the scans. It is such a good feeling to feel good again. I never really appreciated my healthy body till now. The chemo makes me feel horrible. I have no energy. I feel nauseous all the time and I get horrible headaches. They hurt so bad. I get s...

Keeping Kolby

Kolby’s website was originally named so appropriately by Sarah Barlow, one of our family’s closest friends. I think that more than anything it describes this strong selfish desire we have… not to lose our daughter in this battle with NHL cancer. Today we won another round in that fight. We got some results back from the cancer center today that had a lot of positive in it. Kolby’s new MRI and PET scans indicated that the cancer is on the retreat. Her tumors have reduced in size significantly as seen in the MRI photos, and the cancer cell activity has also dropped significantly. This is a good indication that the chemotherapy treatment is having a positive effect on her bone lesions and tumors. She still has mild patchy areas of disease on her sternum, anterior right first rib, anterior left 5th rib, in her lower vertebrate, and in her pelvic area. These areas still lit up on the PET scan, but the activity was greatly reduced. There was one area on her on her right first rib that has mi...

Father's Day

Today was a great day for our family. Kolby went to church. It was a challenge , but it was really important for Kolby to go to church today with her dad. She got up, got ready and she looked beautiful. I really wish I would have taken pictures of the girls with their dad, but we were in such a hurry to get off to church that I forgot. Next time I will for sure. She was pretty emotional at church. It was a lot for her to get ready and go to church for the first time in a while. She wanted to arrive a few minutes late, and leave a few minutes early. It is really hard for Kolby to see people, only because of all the different emotions she is feeling right now. She gets very emotional when people hug her and express their love and support. She loves it, but right now, she cries every time she has a new visitor or sees people. So, please do not get offended if Kolby is quiet when you see her or visit with her. It's just how she is right now, and that's ok . Everyone deals wit...

Keeping Kolby

Search This Blog